Saturday, January 4, 2014

Rolling for a Cause


I'm wondering if I could ask for your help. I entered a 5k walk/run to benefit the Muscular Dystrophy Association. I will not be running or walking. I will be rolling, which on this particular occasion is not only permissable, but highly appropriate! The MDA provides patients with doctor visits as needed. They keep a 'closet' with DME (Durable Medical Equipment) to give to those who can't otherwise afford it. And they are leaders in the field of much needed research for neuromuscular diseases of many types. In addition, they offer counseling, support and friendship to patients and their families. You see, the MDA is ALL about patient AND family care.


So back to my original point. Please help me raise money and awareness for the Muscular Dystrophy Association, so they can help people in need. Your money will be well spent. In fact, for this event, all proceeds will go to help the families in my area who have children or parents with neuromuscular disease. I will get to see, firsthand, how our money is being implemented and I can keep you apprised of the progress being made. There is so much need. And so I thank you.

Please click the link below to make a difference:

http://www2.mda.org/goto/Latos






Friday, January 3, 2014

Warning

Somedays are like this.

I got up with the intention of  doing a little light housekeeping, taking a shower and heading to the mall for a couple of errands. Steve needs a battery for his watch and I wanted to go to Sephora for some skin care goodies. Besides, the mall is my go-to spot for a little exercise and getting out of the house. I'm comfortable there and at my Starbucks, where I can also frequently be found!

I did everything I had in mind to do...until it came time to actually go to the mall. Haha!

As it happened, once I was ready to go, I was too exhausted to go there!! Oh, I made it into the car. I put the key in the ignition of my van, backed out of the garage, pushed the garage door opener to put close the door and...
...sat there staring at the dash. The gas light was on!  UGH ...Two stops?? I didn't have it in me and I knew it! The gas and the mall would have to wait. I went back in and hit the sofa. These muscles were also on 'empty.'

Neuromuscular disease prevents or inhibits the production of adenosine triphosphate, ATP, the energy that fuels muscles. And today, just like my van's gas gauge, my muscular system's warning light was also on, saying, 'Don't go very far, Ann. You're not going to make it today.'

I'm thankful for this 'warning system' because it keeps me from making mistakes. Once I was resting, with my ever-present companion, Jimmy Page, I knew I was in the right place. I think all of us should pay closer attention to the messages our bodies are sending. I knew it as an athlete and I know it now. Peace xx


P.S. This post was written when I was still using my walker at the mall. That isn't possible anymore. Neuromuscular disease is always progressive. Always.